I know that the nerve has not healed yet (because it keeps firing). However, there are days that are “good” and I feel great hope and happiness. These are days like early Friday when it was the first time I actually didn’t dread my morning shower – the running water did not cause the usual excruciating pain and then putting on my clothes did not burn for as long. So there was hope. I was thinking that I was getting to the right dose of Gabapentin.
I went to work happy as a lamb. But after about 2 hours, the pain came back but then it died down again. However, about noon, it was firing continuously. I was not only in pain but PO’d too. I get angry at myself when I have these electrical shocks (cattle branding). Anyway, I had to resort to taking a Tramadol and that bothers me too. The last thing I want is to become addicted to pain medications.
Some days I only have the allodynia (the electrical shocks and burning) when something rubs the area or even light wind against it) and those days are sort of tolerable because I have messed with my clothing so that I can limit the rubbing. In fact, when I go out for a walk in my neighborhood, I think people who see me in my t-shirt must think I’m a derelict but nothing is on my back so that’s great.
But then there’s other days where I have both the allodynia and the spontaneous pain. It’s the spontaneous pain that really gets me discouraged. It comes randomly and then it continues to fire, fire, fire. I actually moan and groan and curse at work when I’m alone in my office. When my office mate is there, I have to control myself. At home I actually yell out when it gets bad.
I try not to lose hope. I am trying to act more normally and do things other than going to work. For the first 4 months all I could do was go to work and make it through the day then come home and crash. Now I’m starting to write again and trying to do other things.
A good friend at work told me something about the narcotics. She said she was told when she was pending back surgery that “you do what you need to in order to make it through the day”. I am trying to believe in that and know that I won’t allow myself to get addicted. I try to do everything I can to not take the medications but sometimes I just have to give in and take them.
Back to the ferris wheel of postherpetic neuralgia….’
My presence on Facebook is intermittent lately. I am really just going to look for posts by Jan Walker who’s doing what I have wanted to do since the early 90s (1990s not 1890s – ha ha) – running across the United States. She is brave and determined and since I want to follow in her footsteps I check FB for her posts every day.
An old picture of him but showing his support for pancreatic cancer research
Yesterday I just happened upon this post from a great guy I “know” through Facebook – BJ- he was inquiring about doing Vol State and the race director – Laz – told him he might be able to squeeze him in. BJ said he just needed to figure out how to get the entry fee.
I wrote them both and offered my entry fee for him. Bottom line – Laz did his magic (since the race is full) and he’s going to let BJ in. BJ seemed really happy and I’m glad I could help. He has done the run across the US twice and is a great supporter and fund raiser for pancreatic cancer research. He does so much for others that I am glad I can do something for him.
So, some good has come from this. Had I been selfish and gone and tried to do the race I would not have made it and now someone else whom I know can finish will have the opportunity. Small things but I am reaching for anything to be grateful for and happy about. Good luck BJ and thanks to Laz for making it happen.
I was amazed…and thankful…and filled with gratitude for my TENS unit. I made it through the morning conference with my back support (it’s the best way I can describe it) with a few twinges that made me think I might have to reach for the Tramadol. But fortunately, between the TENS and the back thingie, I was able to make it without meds. I got to the airport very early and checked in, ate, and tried to nap while waiting for the plane. This was a bit tough but not too bad. Once on the plane I used my TENS, back thing and slept most of the way even though I was uncomfortable with all that, I was not in pain. I was amazed and very happy. Then I only had to get thru the flight from Dallas to San Antonio. That went off well too. I made it home and after I had been sitting for awhile, the twinges began. I went to bed and had to take the Tramadol but that didn’t surprise me. I’m glad I’m home for sure! And very glad it was not bad!!!! Maybe there is some hope.
Getting here to D.C. was trying enough on Tuesday. I did pretty well with my back “pressure” device (one of the few ways I can relieve that burning pain when it comes) but I also had to take too many (in my estimation) pain pills to get through it.
I have to go through the same ordeal tonight when I return home. This time I will use my TENS and hope that I can make it through TSA security without much problem. I will also take the pain meds before I get on the plane and have my device. But when the “cattle brand” comes, it comes with a vengeance and there is NO stopping it.
I only got a few hours of sleep last night so maybe that will help me sleep on the way back.
I just want to get home so I can take my shirt off and sleep in my own bed…and relax this coming weekend.
Much to my chagrin and with great sadness, I have had to make the decision not to participate in this year’s “Tennessee Trek” aka Vol State. I know that everyone who has participated and who knows me will simply think that I am weak and unable to handle pain. I sincerely hope that isn’t totally true as evidenced by my completing half of last year’s event with stress fractures on both feet yet still finishing. I would take that pain over this any day.
I had determined that I would use last weekend’s 3 days of marathons to make that decision. While I feel that my lower extremities could actually handle the 314 miles even though I haven’t trained at all, my nerve pain (postherpetic neuralgia – Google it if you think I’m being a sissy) got the best of me on both days after 5 miles. It became totally intolerable by the 13th mile of day 2. I had managed to walk 17 1/2 miles on Day 1 and really only stopped because I thought that would be best for my legs. But the second day I just could not go on. I wanted to cry so many times. I know people have much worse pain but this has taken me down.
So, after I came home (actually on the way home) I realized that in another month the probability of this going away was probably miniscule. So, today I wrote to Mr. Cantrell, the race director, and told him that I wouldn’t be able to participate. It pains me terribly and I am pretty depressed at having to make that decision. It just downright sucks.
I miss challenging myself, I miss the wonderful people I meet and most of all, I miss the time with myself when I’m out on the road.
I do believe the universe is sending me a message through my body since I’ve been essentially out of the running business since the end of last year’s Vol State. But no matter how much I examine this I cannot “hear” the message. I hope I do get it soon.
But for now, I’m very, very sad.
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Well, it’s amazing. Now I know what the pain has been that has been intermittently plaguing me since November 2015. The past 5-7 days have been very weird. All weekend I had really really bad left back and chest pain. I could NOT get comfortable at all. So, Tuesday the 17th I went to see my provider. He didn’t know what was going on so we just decided to watch it. While sitting in the pharmacy waiting room, I had this intense itching under my left breast but didn’t really think anything of it. The rest of that night was consumed with wondering what the abdominal pain I developed was from. Geez, what’s going on here? The morning came and although my back pain had abated some, I was still having this very uncomfortable abdominal stuff so I stayed home from work. A bit later, I looked at the itching area and realized I had shingles. I sent pictures to my PCM and then went to get a prescription for an antiviral.
It made sense now that the pain that I had been having intermittenlty for 4 months was either a pre-shingles prodrome or even another post-shingles pain – in great retrospect I found I had a rash in the same area of my back in September but it didn’t manifest like the full-fledged episode this did. At the time I thought I had a contact dermatitis from my TENS unit but who knows.
All I know is now I definitely have shingles, damn it.